JACKSONVILLE, Fla. -- Dr. Richard Boles at LA Children's Hospital is considered one of the leading researchers of Cyclic Vomiting Syndrome, CVS.

First Coast News anchor Jeannie Blaylock has been sharing the story of her daughter, Katie, and her struggle with CVS.

Dr. Boles says the problem with CVS is that "most general pediatricians know nothing about it." It's tough on patients because they look normal and healthy between vomiting episodes and people accuse of them all all sorts of other problems from eating disorders to psychiatric issues.

A study in Europe found 1 in 50 school-age children has CVS, which often takes 2-12 years to diagnose.

CVS is not just regular vomiting. The episodes start and end suddenly, typically lasting between 1 and 10 days. The vomiting can be intense and can come with lethargy and headaches.

A good source of information about CVS is the national CVS Association. Here's a link to their website: http://www.cvsaonline.org/

Here in Jacksonville Dr. Anthony Perszyk is considered an expert by many families and physicians. His phone number is 904-633-0920. He's a pediatrican and clinical geneticist with UF Pediatric Multispecialty Center.